Adherence Assessment
Guidelines
published by the American Diabetic Association suggest glycemic goals as
the achievement of hemoglobin A1c levels at less than 7%, fasting
glucose levels of 70-130 milligrams per deciliter, and an after meal
glucose level of less than 180 milligrams per deciliter.
Clinical and
Other Flags:
•Persistent
high levels of A1c
•Erratic
fluctuations of blood glucose and diabetic crisis
episodes
•Signs
of medication ineffectiveness
•Dietary
non-adherence and weight gain
•Inadequate
self-monitoring of blood glucose
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Many
diabetic educators have abandoned the word “compliance” as one that is
used as a diagnosis and may be used to judge a patient’s character or
personal values--rather than a description of the obstacles they face.
The purpose of the assessment is not simply to determine whether a
patient is not adhering to recommended therapies, but to determine the
barriers to adherence so that they can be addressed.
Non-adherence should not only be identified early, but carefully
assessed in order for the patient, caregivers, and providers to
determine the most suitable course of action to improve adherence and
outcomes.
Clinical signs can trigger an assessment. Laboratory values that are at
odds with what should be seen in therapy-adherent patients suggest the
need to investigate both adherence and the appropriateness of
medications and dosing levels. Persistent hemoglobin A1c, erratic
changes in blood sugar levels, and episodes of diabetic crisis resulting
from lack of blood glucose control should be evaluated for possible
non-adherence issues.
Other
co-existing conditions that are medication-controlled, such as
hypertension and hyperlipidemia, can be evaluated for effectiveness. If
hypertension and hyperlipidemia are persistent despite prescribed
medications and other therapies, an assessment for overall adherence to
therapy recommendations should be completed.
If
patients experience weight gain or continued elevated hemoglobin A1c
levels despite dietary recommendations that should control those issues,
then non-adherence should be explored. If the patient does not have
adequate records of self-monitoring of blood glucose, routinely misses
appointments, and fails to follow through on recommended clinical
testing, a well-rounded assessment may identify barriers to adherence.
Identifying non-adherence but not seeking to alter the underlying cause
is like diagnosing a disease and making to attempt to cure it.
•Review
of therapy complexity and costs
•Assessment
of provider-patient relationships
•Review
of self-monitoring data and daily schedule and activities
•Evaluation
of dietary intake, depression
•Explanation
of missed appointments
Assessments can be designed to allow the patient to self-report barriers
to adherence. Quick surveys can help to identify the need for more
in-depth exploration of these barriers during the office visit, and can
help to prioritize those issues that can be initially emphasized.
Further assessments may include psychological evaluation, such as a
depression index or signs of problematic family and support network
dynamics. A self-reported questionnaire on dietary intake and activity
levels can help to identify non-adherence to dietary and exercise
recommendations.
Costs
for therapies is a common barrier to adherence and both costs of
medications and type of insurance coverage may make a difference in this
aspect of treatment. In addition, a discussion on the patient’s
perceptions about the complexity and burden of treatment will assist in
identifying the need to intervene in these areas.
It is important to remember that surveys and assessments are only
accurate in a non-judgmental environment. A patient who feels they can
not trust their healthcare team to not condemn them for having barriers,
will not reveal those barriers, and treatment is unlikely to progress
effectively.