Special
Considerations: Trauma Response
Not all diabetes populations are the same. One of these
special groups within the diabetes community are
patients who are working through a trauma response. It’s
important to recognize the difference between a phobia
and a trauma response.
Phobia –
prexisting irrational fear not linked to life event
Example – hypophobia- newly diagnosed PWD
purposely leaves their blood sugar above 200 fearful that
they will go low, lose consciousness and crash their car. No
history of severe hypo, but does get jittery if BG drops
below 110.
Trauma response
– maladaptive response to life event (or events) resulting
in ongoing fears, anxieties or fixations on situations
perceived by the observer as irrational in situation or
scale.
Example- Patient with diabetes
does not tolerate blood sugar below 150, 2 years following
severe hypoglycemia with loss of consciousness and
administration of glucagon. |
Very often
in the diabetes world anyone exhibiting an intense fear
or anxiety is labeled as a phobia patient.
They’ll
be labeled as being hydrophobic, needle phobic, or
something else. But that can be really demeaning and
also can cut the patient off from the appropriate care
and treatment they need because a phobia can be a
pre-existing, rational fear not linked to a life event
(for example someone with a hypophobia might be someone
who’s newly diagnosed and purposely leaves their blood
sugar above 200 because they’re afraid they’ll go low,
lose consciousness, and crash their car. They don’t
actually have a history of severe hypos, but they may
have been
told about that they were going to lose consciousness at
some point. This kind of phobia can react
well to
education and to exposure therapy, gradually increasing
their
comfort level. On the other hand we have a trauma
response that is a maladaptive response to a life event
that results in them having ongoing fears,
anxieties or fixations on situations that are perceived
by others as irrational in situation or scale. An
example is a patient with diabetes who won’t allow their
blood sugar below 150 because two years ago they had a
severe hypoglycemia event with a loss of consciousness
and were administered glucagon. You can see this person
doesn’t have an irrational fear--it’s a very real
fear—it’s an event that actually happened. So they’re
going to need a different form of therapy from
the previous example. They
will benefit from a different sort of cognitive
behavioral approach that is going to allow them to work
through that trigger and thought process. Calling what
they’re experiencing a phobia is demeaning because they
know phobias are irrational fears of something that’s
not really going to harm (the example that
comes to mind is
someone who fears sharks and so avoids swimming pools).
In a trauma response they have experienced a real, near
life-threatening event and their reaction, though
irrational in nature, is an adaptive mechanism to a very
real, potential threat to life and safety. This actually
has an impact on Maslow’s hierarchy of needs and so we
have to identify that differently and get those patients
a different level of support. It’s also important to let
the patient know that what they’re dealing with is a
trauma response. Giving them that validation can help
empower them to seek appropriate treatment and move
forward through recovery.
Special Considerations: Disordered Eating
Diabetes,
by definition, requires some level of disordered eating.
To eat effectively
with diabetes
requires the ongoing quantification and qualification of
foods. It also encourages the active avoidance of some
types of foods. People with diabetes learn that some
foods are “good” for their blood sugar while others are
“bad”.
Definitive
Disordered eating:
Addition of specific food related behaviors out
of feelings of shame, control, guilt, or
fixation.
Definitive eating
for diabetes management:
-quantifying and qualifying all food intake
-feeling a need to control what foods and how
much one eats
-concern that deviating from that plan will
result in physical harm
Labeling of foods as “good” or “bad” based on
content or blood sugar impact |
These
messages are then echoed by “food policing” supports and
caregivers who restrict food options or add guilt and
shame to the food relationship. This is the key piece
that converts the “distorted eating” of diabetes into
the disordered eating that can post a mental and
physical health risk. When these practices of
restriction, avoidance, fasting, or binging are combined
with shame, guilt, or thoughts of self loathing or self
harm, they cross over into the realm of disordered
eating and eating disorders.
These are
particularly hard to spot in diabetes because from the
outside they can look like dieting.
We must
avoid promoting food restrictive diets in diabetes
populations, labeling foods as good or bad, and avoiding
all judgmental language regarding food (such as talking
about good or bad foods, junk foods, overeating, or
gorging).
We should
also avoid rewarding and complimenting weight loss or
carb restriction that results in blood sugar goals being
met. Any weight loss or goal reaching should be done at
a steady, healthy, and sustainable pace long-term. And
forward movement toward goals should be met with
discussions about the
resultant
stress levels, whether they feel deprived or are
avoiding any foods, situations or events to accomplish
their goals, and how they feel about their progress and
how they would feel if their progress stopped today.
Disguised as
“dieting”
Do not “reward”
weight loss, carb restriction etc.
Always ask open ended questions about food
and eating.
Never use “judgement words” (good, bad,
junk, over-eat, gorge) about food. |
|
These
kinds of open discussions can then be followed with
encouragement and reward for the openness of expression
and their willingness to entertain new ideas.